Voices of Research Participants Episodes
Listen to episodes from our special series highlighting the voices of participants in dementia research studies.
“[Participating in research] really opened my eyes because I never really thought there would even be a chance to even seek help, knowing what my path might be with dementia and having it in my family.”
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Mindfulness and Meditation Practices for Living with MCI
Receiving a diagnosis of mild cognitive impairment (MCI) or dementia can be an emotional and challenging experience. How can meditative practices support those living with MCI? Buddhist chaplain Sharon Lukert wrote her book, Until My Memory Fails Me, with the goal of sharing mindfulness and…
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Getting AHEAD of Alzheimer’s with Inclusive Clinical Trials
Dementia Matters Special Series: Voices of Research Participants When Ms. Carol Turner found out her family had a history of Alzheimer’s disease, she wanted to know how she could help herself and others with similar experiences. After learning about the AHEAD Study, which is…
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Advocating for All: The Impact of Community and Equity in Dementia Research
Dementia Matters Special Series: Voices of Research Participants What do you do when dementia symptoms begin to upend your entire life? For Brother John-Richard Pagan, the answer was to persist in finding a diagnosis and a supportive community that aligned with his values. In…
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Living with Lewy Body: A Neurologist’s Journey Through Research and Dementia Care
Dementia Matters Special Series: Voices of Research Participants What do you do if you have a family history of dementia and are experiencing symptoms, but can’t get a diagnosis? Dr. Sara Langer has dealt with just that. In the latest episode of our Voices of…
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From Caregiver to Research Participant: How One Woman’s Experience as a Dementia Caregiver Drew Her to Alzheimer’s Research
Dementia Matters Special Series: Voices of Research Participants Caring for a loved one with cognitive decline can be challenging. While it is a labor of love, burnout is all but inevitable. In this episode kicking off our Voices of Research Participants series with co-host Sarah…