University of Wisconsin–Madison

Tag: community

Promises to Practice: Creating Sustainable Community Partnerships to Support Alzheimer’s Research

Gina Green-Harris joins the podcast to discuss the importance of collaborating with communities in Alzheimer’s research. Sharing her experience as a researcher with the Wisconsin Alzheimer’s Institute (WAI) and the All of Us research program, she describes the key tenets of community engagement and explains ways researchers can build intentional, sustainable partnerships with communities throughout the research process This episode is part of a series featuring speakers from the National Alzheimer’s Coordinating Center’s (NACC) Fall 2022 ADRC Meeting, where the overarching theme was Diversity, Equity, and Inclusion (DEI) in ADRC research and operations.

Guest: Gina Green-Harris, MBA, director, Wisconsin Alzheimer’s Institute Regional Milwaukee Office, co-primary investigator, co-director, University of Wisconsin–Madison’s All of Us research program

Tackling Stigma and Alzheimer’s Disease within the AAPI Community

Vince Tien and Dr. Dung Trinh join the podcast to discuss the many ways Alzheimer’s disease affects the Asian Americans and Pacific Islanders (AAPI) community. Vince Tien and Dr. Trinh both work as part of 360 Clinic, a multi-specialty medical group focused on telehealth services. With their experience in healthcare and telehealth services amidst the pandemic, Tien and Dr. Trinh describe the barriers and stigma that discourage the AAPI community from seeking help for dementia and the ways that we can dismantle those barriers. 

Guests: Vince Tien, co-founder, CEO, 360 Clinic, and Dung Trinh, MD, chief medical officer, 360 Clinic

Being Patient Translates Alzheimer’s Disease Science for the General Public

Being Patient is an online news source dedicated to providing research news, caregiver information and resources related to Alzheimer’s disease. Being Patient founder Deborah Kan discusses how her personal experiences led her to develop the website, as well as how online resources and communities can help empower individuals affected by memory loss.

Guest: Deborah Kan, journalist, founder of beingpatient.com

Finding Community Resources after a Dementia Diagnosis

The quest for both patient and caregiver resources in your own community can be difficult. Bonnie Nuttkinson of the Alzheimer’s Association tells us the many different free resources for dementia patients and their caregivers.

Guest: Bonnie Nuttkinson, Program and Advocacy Manager, Alzheimer’s Association South Central Wisconsin Chapter

Support After Diagnosis: Dementia Care Specialists and Dementia Friendly Communities

After a diagnosis of Alzheimer’s disease or other dementia, patients and caregivers can turn to local agencies and associations for education and support. Dementia friendly communities represent an international movement to help businesses, the general public, and government agencies better recognize and support people living with dementia.

Guest: Joy Schmidt, dementia care specialist, Aging and Disability Resource Center of Dane County