University of Wisconsin–Madison

Tag: NACC

Promoting Open Science and Community Engagement with the National Institute on Aging

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Dementia Matters Special Series: The National Strategy for Alzheimer’s Disease Data and Research Part 6

Concluding our special series on the 2022 Spring ADRC Meeting, Dr. Cerise Elliott joins the podcast to discuss the NIA’s work within the field of Alzheimer’s disease research, how the NIA promotes open science to advance research across the ADRC program, and other key takeaways from the spring meeting.

Guest: Cerise Elliott, PhD, program director for clinical interventions and diagnostics, division of neuroscience, National Institute on Aging

Moving into the Digital Era of Alzheimer’s Disease Research

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Dementia Matters Special Series: The National Strategy for Alzheimer’s Disease Data and Research Part 5

Whether it be due to new research findings, innovative approaches and ideas, or technological advancements, Alzheimer’s disease research is constantly evolving. Now, dementia research is headed into the digital frontier. Dr. Rhoda Au joins the podcast to discuss digital biomarkers, gamifying cognitive testing, and how the field of Alzheimer’s disease research is entering its digital age.

Guest: Rhoda Au, PhD, digital technology leader, Boston University Alzheimer’s Disease Research Center, co-principal investigator, director of neuropsychology, Framingham Heart Study, professor, Boston University School of Medicine

National Efforts To Standardize Brain Scan Data For More Accurate Alzheimer’s Risk Predictions

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Dementia Matters Special Series: The National Strategy for Alzheimer’s Disease Data and Research Part 4

Brain imaging is a key tool in Alzheimer’s disease research and diagnoses, allowing scientists to see changes in the brain years, even decades, before an individual experiences symptoms of dementia. The data these images provide researchers with is incredibly useful, leading the National Alzheimer’s Coordinating Center to take up numerous efforts to standardize, unify and share this type of data across the Alzheimer’s Disease Research Centers. Dr. Beth Mormino joins the podcast to discuss the NIA’s SCAN initiative, the new “legacy” data set, and the importance of standardizing MRI and PET scan procedures to predict brain trajectories better.

Guest: Beth Mormino, PhD, assistant professor, Stanford University

Protecting Participant Privacy and Making Predictions Using Alzheimer’s Data

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Dementia Matters Special Series: The National Strategy for Alzheimer’s Disease Data and Research Part 3

With big data comes big responsibility. Dr. Sean Mooney joins the podcast to discuss his work with NACC, the precautions NACC takes to keep participant data secure, and how this data can be used to better predict Alzheimer’s disease risk to allow for earlier interventions.

Guest: Sean Mooney, PhD, associate director of technology, National Alzheimer’s Coordinating Center, Chief Research Information Officer, UW Medicine, professor, University of Washington

The Future of Sharing and Accessing Alzheimer’s Disease Data

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Dementia Matters Special Series: The National Strategy for Alzheimer’s Disease Data and Research Part 2

Dr. Sarah Biber, the program director for NACC, joins the podcast to discuss building a one-stop shop for Alzheimer’s Disease Research Center (ADRC) data and what it means for the future of collaborative Alzheimer’s disease research.

Guest: Sarah Biber, PhD, program director, National Alzheimer’s Coordinating Center

Introducing the National Alzheimer’s Coordinating Center

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Dementia Matters Special Series: The National Strategy for Alzheimer’s Disease Data and Research Part 1:

Kicking off our six-episode series on the National Alzheimer’s Coordinating Center and their Spring 2022 ADRC meeting, Dr. Walter Kukull joins the podcast. He explains what NACC is, what they do with the data they collect from the 42+ Alzheimer’s Disease Research Centers, the center’s biannual ADRC meetings and what he’s most excited about for the next five years of Alzheimer’s disease research.

Guest: Walter Kukull, PhD, director, National Alzheimer’s Coordinating Center, professor, University of Washington department of epidemiology